Disease detectives: NIH network to solve 'ultrarare' mysteries
This article was originally published in Scrip
Executive Summary
The National Institutes of Health (NIH) on 1 July put up $43m to form a new network of elite clinical centers aimed at solving and finding cures and treatments for some of the most difficult medical mysteries, in which patients often go undiagnosed for years – even dying of their diseases before the conditions can be identified.